Stuart's EEG was abnormal. I am told there was a
lot of background spiking. The report says "spikes and slow waves". It also indicates they are coming from the left central-temporal region. An earlier EEG had showed activity coming from the front and right regions, so I'm not sure what it all means when put together. We have been referred to the Epilepsy Center at the Cleveland Clinic, which is about a 5-6 hour drive for us. Our doctor's office said they wouldn't do a lot of testing, that they may tinker with his medication. But the Clinic said he would be admitted to the hospital for about a week for intensive monitoring! The reason for that is to decide whether he needs a different medication, or if he might be a candidate for surgery. Brain surgery, yikes. Somes tests that were mentioned were neuropsychological, IQ, long-term video monitoring with medication removal to provoke seizures, and MRI. But the dates have not been scheduled - we expect to hear from them in the next week. It's really hard to not know when all this will happen. So many questions - where will I stay, who will take care of my other son, should my husband go, how long will we be there, how will Stuart keep up with school work?
1 comment:
Goodness, you have a difficult time being a Mum! Hospitals and doctors can be scary places when you don't know what they will find, good luck with all this and hang in there.
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