24-Hour EEG Recommended to Us

We went to the neurologist this morning, but only saw the new PA. We told her about Stuart feeling "seizur-ish", as he says, so often lately. He describes it as his brain being "nauseous". The PA recommended that we get a 24-hour video EEG to see if he is having tiny, unobservable seizures to cause his feeling bad so often. I wonder if it's not the amount of medication he's taken. He had drug levels done in May, which were okay. But since his dose has been raised twice since then, they want us to do it again soon. I also wonder, if he is having little seizures we don't notice, what good will it be to know that? The medicine won't change, will it?

Apparently, the first available slot for the EEG is August 27. School will be back in by then - it will be in the middle of the first week of school. He will be going to a new school this year, and I hate to see him miss some of the first days. On the other hand, not too much is happening the first few days of school, so maybe it's not such a bad time. I'll have to pick him up early on Wednesday, then he can go back on Friday, provided he's not too tired.

We've not had a 24-hour EEG, so I'll add that experience to the blog when we're done. I assume it's an inpatient thing, particularly since video is involved. I don't know whether they will try to induce a seizure, but I would think not since they are supposed to be looking for small ones that we don't really see. I guess I will be the one to stay overnight with him. How easy or hard will it be for an 11-year-old boy to be "tied up" on some wires all day and night? We'll see.

I asked today about the awful nausea Stuart has after a seizure. They suggested a suppository to give him that I can't remember the name of. They don't particularly want him to take it though, unless it's really bad, because it makes one groggy and this can be confused for more seizures or seizure problems. Seems like nothing is simple or easy.