First Day of School

I hand-delivered to the school nurse today Stuart's medical form, emergency form and 2 Diastats (his emergency, prolonged-seizure medication). The school is so big, they wanted one for each level. The nurse is ready to give training to all the teachers and aids on seizure first aid and Diastat administration. Some of the teachers seem nervous about Diastat. I assured them that he has never needed it, so probably won't in the future. He probably won't even have a seizure at school. But I want them to know how to recognize one, and how to treat him when it's over. I don't want people to panic. The nurse seems quite gung-ho about getting everything set up for him - I think she enjoys the challenge. Much better than the one nurse in first grade who refused to even have Diastat in the school.

Another seizure

Stuart had another seizure last week. This one happened out in public. My husband went to get him and carried him home on his back. The doctor wants another blood level done. Maybe we will get it done when he's in the hopsital anyway in a few days for the 24-hour EEG.

Two Seizures

Stuart had two seizures with convulsions yesterday, which has never happened before. He had taken his medicine, so we don't have any idea about what caused that. One was at about 4 PM, the other at 7 PM. He was watching TV both times - he had been tired all day, and a little foggy, so I had been keeping an extra eye on him. I called the neurologist today; he recommended raising Stuart's dosage of Trileptal by 1/2 pill a day. How much more can we keep adding on? They told me that the blood levels he had done a couple of weeks ago were good. Who knows what that means. I'm really nervous now about letting him walk alone to and from the school bus in a couple of weeks. Wondering if I should drive, or walk, him to the bus, or just drive him to school.